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Identity Politics and Invisible Disability in the Classroom

March 17, 2009

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When professors interact with students, an unspoken rule dictates that we should avoid calling unnecessary attention to the bodies in the room. We follow this rule instinctively and, for the most part, with good reason. This rule works well particularly in regard to gendered bodily differences. De-emphasizing bodily differences -- most differences being clearly of minor or no importance in an academic setting -- between groups constitutes one way to foster tolerance for individual differences and American democratic ideals. In this regard, classrooms mirror national ideals of human equality.

In the case of disability, America values the benefit gained from de-emphasizing bodily difference so much that this benefit has become a national objective through law: the Americans With Disabilities Act. The central functions of the law include not only ensuring that people with disabilities are provided with reasonable accommodations in the workplace but ensuring as well that they receive accommodations without having to disclose their disability publicly. This latter legal right is, of course, considered a particular advantage for those who have invisible disabilities, such as minor hearing loss (like mine) and other minor to moderate sensory disabilities, chronic non-life-threatening disorders, and some kinds of psychological/cognitive disabilities.

Notwithstanding the potential benefits of retaining this right to privacy about one’s disability in our workplace — the college classroom — I would like to make a bold counter proposal to my professional peers who, like me, have invisible disabilities: let us as a group establish a common policy to come out as disabled in our classes each semester. My experience with both options of negotiating my disability — retaining privacy and coming out — has shown me that, although coming out is not a necessity for me to perform my job as a professor and has even brought about occasional awkward moments, coming out as a professor with a disability is more than worthwhile in so far as it fosters positive identity politics among my students with disabilities.

I had chosen to retain privacy at the universities, one in Rhode Island and one in Louisiana, I had taught at as a teaching assistant prior to being hired 13 years ago on the tenure-track at Angelo State University, in West Texas. However, to adjust to my new Texan students’ speaking style (for an exaggerated example of this style of speaking, think of Boomhauer on the Fox Network show "King of the Hill") and low-keyed body language, which limits visual communication cues I can usually rely on, I was prompted to disclose my right-side hearing impairment. I worried at first about causing unnecessary confusion for students about the extent of my impairment. But I found after that the results of the first experiment in coming out were so positive that such minor confusion, which was less difficult to dispel than I originally thought, was unimportant in comparison with what was gained in coming out as disabled.

In just the first couple of academic years out of the “able-bodied” closet, I was approached by more than a dozen students, including two hearing impaired students who had taken previous courses with me but whose hearing impairments I had not known about, who told me about their own invisible disabilities and sought me out as an academic mentor. I noticed that students with both visible and invisible disabilities exhibited a different attitude toward me and about their own identities as students with disabilities than I had perceived when I was passing as non-disabled. These students with disabilities to whom I had disclosed my disability were more self-assured than my students with disabilities had been with me when I had been passing as nondisabled. They participated more freely in class discussions and asked more readily and with less self-consciousness for appropriate disability accommodations. And in the decade or so since my first experimental semester coming out as disabled to my classes, I have found that these initial impressions were correct, as scores more students with disabilities responded in the same encouraging ways.

Of course, coming out with an invisible disability must be done carefully to avoid the difficulties often associated with any coming out process involving stigmatized identities. The disclosure must be performed so that one does not seem to be trying to elicit pity from students, either nondisabled or disabled. Nondisabled people confronted with another person’s disability tend to feel, often unconsciously, as Lennard Davis aptly asserts in Enforcing Normalcy, a “welter of powerful emotional responses . . . . horror, fear, pity, compassion, and avoidance," emotions that most professors would do nearly anything, short of a crime, to avoid evoking on the first day of class.

And, even more important for my argument here, many disabled people despise pity-inducing moments on a more conscious level, thinking of them in the same category as Jerry Lewis’s annual Labor Day pity fest, which achieves its financial end through the unjustifiable means of ritually parading Jerry’s “poster kids” in front of a nondisabled television audience so that this audience may collectively sigh in gratitude that they are not “crippled” too. To avoid this counterproductive evoking of pity, I have found that maintaining a matter-of-fact attitude, keeping explanations as brief as possible, and focusing on the impact of the disability on classroom dynamics specifically make the disclosure practically and ideologically useful for both disabled and nondisabled students. (Conversely, professors with invisible disabilities that do not impact classroom dynamics might need only mention that, like some students and faculty, they have a disability too, without specifying it, perhaps as a quick addendum to calling students’ attention to their university’s procedures for acquiring accommodations, which most professors include on their syllabi and refer to on the first day of class.)

In light of these experiences, I urge other professors with invisible disabilities to come out to students as well and to become more aware of the considerable number of faculty with such disabilities on their campuses. For instance, in the English departments at the three universities at which I have taught about 20 percent of faculty members have invisible disabilities (not surprisingly, far fewer than this percentage — less than 5 percent — have visible disabilities). Unfortunately, however, none routinely come out as disabled to their students, and none have given much thought to how many professors and students with disabilities exist around them. Further, all of those to whom I have advocated coming out as disabled have been concerned about negative repercussions in their classes, while none of these professors have thought about the negative repercussions to students with disabilities of such passing by professors.

Indeed, the choice to pass among professors with invisible disabilities prevents all of their students, disabled or nondisabled, from seeing an important facet of the diversity of American culture. Such passing particularly undermines the academic and career-related success of students with disabilities. When these students cannot find appropriate mentors among the faculty who serve them, they lose an opportunity to develop the identity politics necessary to collective social activism. Coming out, in contrast, provides an ideal moment to introduce disabled and nondisabled students to the growing interdisciplinary field of disability studies, and to direct them to research done in the field through the Society for Disability Studies and other resources that examine disability as a category of identity instead of merely as a medical construct. By coming out — refusing the less ethical choice of passing — professors with invisible disabilities can educate students to become truly democratic citizens prepared to explore individual identity from all perspectives.

Linda Kornasky is associate professor of English at Angelo State University.

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Comments on Identity Politics and Invisible Disability in the Classroom

  • Good for you!
  • Posted by Shari on March 17, 2009 at 9:15am EDT
  • I used to work in a Disability Services office on a major US campus and the student fear of being stigmatized by others due to their disability is very much there. I think that it is important for faculty and staff to take a united front to let students know that it is ok to be open about their disability by letting students know about their own limitations. This is part of being a mentor and a role model--to let students know that they can succeed no matter what. It would also let those who do not "have" a disability (all people have some type of limitation(s)) know that these are just normal parts of life...not something that anyone should be ashamed of or be ostracized for. I commend you for putting yourself out there and letting students know it is ok to be themselves. You are a true role model!

  • Posted by Joanna on March 17, 2009 at 9:15am EDT
  • Thank you very much for this article. I have been thinking for a few years now about the necessity of "coming out" to my colleagues and students about my own invisible chronic illness, which is managable but sometimes needs accomodation--outside the classroom. Because it is a little-know and poorly understood condition, I have yet to come up with a way to do so that feels comfortable for me. Your suggestion about tying it to a discussion of the material I always include in my syllabus gives me a place to start. Thank you very much for sharing this idea.

  • Full agreement
  • Posted by Libertarian on March 17, 2009 at 10:30am EDT
  • When I was still teaching in a classroom (before teaching online and working as a bureaucrat), I had to face the issue whether to tell students that if I looked past them or moved my head, that it was not disrespect but Tourette (which got better after I outgrew my teenage years, but still is there, though, thanks Yog, much attenuated). I received much support from students when I said that at the begionning of the class, and therefore it never became an issue. And I was glad to reassure one student, whose little brother had Tourette, too, that it would get better. She was so relieved. I did not regret cominhg out.

  • Great idea-- as long as you have the job security
  • Posted by BetweenRockAndHardPlace , part-time adjunct on March 17, 2009 at 2:00pm EDT
  •  

    I applaud this idea and would implement it myself as it truly does help students. But you can't help students unless you are hired.Adjuncts are disposed of for the slightest of reasons now, so it's really impossible to disclose this information & maintain job security. I have a invisible disability, and due to a rare quarter full of additional illness, I was forced to "come out" to my previously pleased chair. I was *subsequently* ravaged in his/her administative review of me. The open disgust on his/her face when I admitted to what s/he perceived as weakness led to my never being able to work in that dept. again.No use suggesting recourse to the union as I don't have enough seniority to qualify. Reporting to the government, I was told by those who are knowing & sympathetic, means I can't apply for other jobs at that institution.We're back to the situation reported elsewhere in this journal: There are two different realities for tenured/ tenure-track faculty and the majority of faculty left without recourse to fair practices.Back I march to my closet...

  • Out and Proud!
  • Posted by Professor G , Assistant Professor on March 17, 2009 at 2:15pm EDT
  • I was diagnosed with a form of ADD well into adulthood and it is something I mention to students each term.   I link it to my course policies because I want students to understand why a seemingly arbitrary rule is in fact a critical part of my being able to facilitate their learning.  I also "come out" for all of my students who live with ADD or another condition/disability/health challenge -- for some of them, having a positive, functional role model (me on most days) is a powerful thing.  My students have been terrific -- the occasional frustrations I encounter are with colleagues, allegedly educated people who have NO IDEA of what it's like to live with the circumstances that they are so quick to dismiss.  My quest to pleasantly educate continues!

  • Audiences
  • Posted by Tiny But Tough , Lecturer/Writing at University of California, Merced on March 17, 2009 at 2:15pm EDT
  • After being accosted by campus police at our local junior college, and being questioned about the right to have a disabled placard, I would agre that it is critical to raise awareness of "invisible" disabilities. However, I would like to remind the author that television "audiences" are also invisible. While I and those in disability studies disdain Mr. Lewis' tactics, the assumption remains that the general public is able bodied, and buys into the idea that disability belongs to others and is not part of all of our lives.

  • Posted on March 17, 2009 at 9:45pm EDT
  • I spent most of last academic year walking with a cane (I'm 28 years old.)  My spring statistics classes met me that way, and for months we did not speak of it.  The obviously visible was politely invisible, even when I used the cane as a pointer.  When we reached the lesson on conditional probability, I chose to change that.  I explained that I would soon undergo surgery, and how I had used my knowledge of statistics to come to that decision.  As a result, I developed a strong relationship with the class and expanded my teaching skills.

  • Getting Past Metaphors of In/Visibility and Closets
  • Posted by Margaret Price , Assistant Professor / English at Spelman College on March 18, 2009 at 1:15pm EDT
  • I applaud the call this article makes for professors to talk more about their disabilities with students. With the necessary caveats regarding risk, stress, and possible repercussions, it makes a strong case for the importance of not "passing" all the time--with which I strongly agree.

    However, I also want to encourage us to try to get beyond these familiar metaphors of "the closet" and "visibility." For one thing, my mental disabilities are often classified as "invisible," but they become quite visible in certain contexts--for example, if I'm having a panic attack. For another, "visibility" or being "closeted" is not simply a matter of choice. As Tobin Siebers has thoughtfully written, identities that tend to be closeted are not simply those that are undisclosed but that are "difficult to disclose"--i.e., are refused recognition by normate society.

    Some of the authors who have written on this include Siebers, as well as Cal Montgomery and Ellen Samuels. There are also some great pieces in the new AHEAD anthology, _Disabled Faculty and Staff in a Disabling Society_. I will be glad to provide references for anyone who wants them ... didn't want to get too long-winded here. :)

  • Posted by Laurie on March 18, 2009 at 1:45pm EDT
  • A poet who investigates my chronic illness in my own writing, I have always been "out" with my students, from the first day's introductions, and I agree with Linda Kornasky that a matter-of-fact approach is indeed best (but never completely plotted out). And it does make students more comfortable, and increases bonding within the classroom.

    But I am an adjunct, and though I am well-regarded in my own department, I am sure my chances on the tenure track market have suffered because I am out. Seach committees read my work and develop perceptions based upon it and upon others they may know with my condition. Before one interview, I waited outside the hotel room until my appointed time and overheard some rather ableist conversation about the accessibility of certain campus buildings . . . that interview was particularly hard, and I feel it had something to do with the committee's perception of what my disability might look like (wheelchair), compared with what I actually did look like (walking, in high heels no less). With invisible disability, even the term implies magic, doesn't it? It's invisible. This in turn implies dishonesty--a trick--if the disabled person doesn't match the limited non-disabled perception. I figure I wouldn't want to work with colleagues like that, and wait for the chance to find a more suitable and compassionate match. At the time, though, I shrunk back into the closet, deferring, and never addressing what I'd overheard. Had I been boldly out there, I am sure the interview would have seemed more like a personal victory.

  • I agree with BetweenRock...
  • Posted by Dr. Binky on March 18, 2009 at 6:45pm EDT
  • While it is indeed important and lovely from a political and ethical standpoint to be "out and proud" with our students and colleagues, I agree with BetweenRock that the real ability to do so is dependent on our position of power -- or powerlessness -- within academia. For the adjunct class, there is an unwritten demand that you are super-normal, able to grade towering stacks of papers in a single weekend. If an invisible disability or invisible chronic illness leads to "excessive" absenteeism or an inability to grade those towering stacks of papers just as quckly as a (presumably) non-disabled colleague, then there are very deep-seated and real fears that one's contract will not be renewed. Even in my new position in a disability-friendly academic environment (visibly disabled boss, some visibly disabled colleagues, others invisibly disabled/chronically ill, and "clients" with developmental disabilities), a colleague and I talk weekly about the presumption that we're still expected to be "supercripwomen" and we haul ourselves in to work no matter what's happening with our bodies and our minds.

  • Posted by william peace on March 25, 2009 at 2:30pm EDT
  • I do not have the luxury of deciding to come out. My disability, paralysis, is as obvious and visible as the wheelchair I use. I have found that using a wheelchair and having a disability has enhanced my rapport with students many of whom are open minded and respectful when it come to disability rights. Most of my colleagues in academia show none of this respect or open minded approach to disability. Campuses remain hostile to the inclusion of disabled faculty members and students alike. I have also found faculty members particularly opposed to including any disability related works into the curriculum. Yet these same seemingly open minded people are the first to include texts by and about other disenfranchised minority groups. It is hard for me to fathom nearly 20 years after the ADA was passed such overwhelming social obstacles remain common place on campuses across the country. 

  • Posted by S on March 25, 2009 at 7:00pm EDT
  • Thank you so much for this article. I'm an undergrad at a small liberal arts college whose professors are all role models in one way or another -- feminist role models, gay role models, obscure academic discipline role models, et cetera. Among several other categories, we're missing, as far as I know, disabled role models. I'm dealing with a chronic illness to which I continue to adjust, and which is pretty new for me. There isn't much space here for my disability; we're a college of high achievers, students and faculty alike, and the standard is set by the able-bodied. Having a professor with a disability of any kind would be really encouraging, if only just to allow me to see that one can thrive in a competitive academic environmet with a disability. As it now stands, there is no such role model here. I hope that if any of the faculty and staff of my college have an invisible disability, they will somehow come across this article, and perhaps come out. It would make such a difference to me, and to every other student here navigating a able-bodied discipline without being able-bodied.